……And God Hit Pause……
Uggg. That is about all I can say. For a few days, I have thought about how I was going to write this blog, IF I was going to write this blog.
Last week, I announced right here on Falling Upward that Joseph is going back to school and we will be moving come the fall. And then, he had his yearly Marfan’s appointment. The best laid plans…..
The best laid plans seem to bite the Rutchik family right in the ***, if you really want to know how I feel.
The long and the short of it is that his heart is leaking, a lot. This leak has caused it to enlarge by quite a bit. If that wasn’t bad enough, we aren’t just feeling like our world is falling in on us, we are feeling like it’s our fault. Three years ago, followed by an emergency wedding, he had an aortic root replacement. Upon the recommendations of well, everyone, we went with the valve saving option. And, here we are, three years later, having what was done before undone, to get to the valve, replacing the valve, and re-doing what was done three years ago. We don’t blame anyone, only 5% of people end of having to have the valve replaced in the first 5 years. We should have known. If ever there were going to be people in that 5%, if would be us.
So, here we are, going to consults and completing tests so we can set this nightmare up. It should happen very soon, at the recommendation of our doctor.
There it is. This is now the only priority in my life. My husband is very worried about money (we don’t have disability as an option at his job) and having to parent while not being able to hold the girls. As the wife, I’m more worried about, well, I won’t even write it, but you must know what I’m worried about. I could care less about all of those other things. We’ll figure that all out after we get through the operation. I’ll live in a cardboard box if I can do it at the side of my husband. I love him more than anything else I could ever want in life.
I didn’t know if I wanted to blog about this, or if I wanted to go MIA from the blogging world as I have done with Facebook. However, God willing, I will sitting in hospitals for many, many weeks to come, and will need something to keep me sane. Plus, this family needs prayers, prayers, prayers, and I know the Catholic mommy community here in the blogging world can offer me that. I thought about making one of those cool buttons like I have seem other families do when they are in need of prayer for health reasons, but I don’t know how to do that and I don’t really have many followers. I’m not a blogging expert, by any means. I surly don't have the energy to take a crash course in the art of the blog. I don't have the energy to eat, or smile right now.
So, I will blog on, I guess! I’m experiencing very dramatic peaks and valleys right now, so I can’t promise a well balanced person, but it will be me. This is my life now.
I’ve had some extraordinary experiences just since this happened on Wednesday. I am in the process of putting words to those experiences and sharing them here. They involve the great support of family and friends, faith struggles and feeling as if we are known as the “Poor Rutchiks” instead of just “The Rutchiks.” We seriously seem to have that cartoon cloud overhead. We discussed how humbling and difficult it is to know there are so many people praying and thinking of us. Although it makes us very uncomfortable, we unfortunately are in great need of it, again..........and thus, I end with a prayer request.
Uggg. That is about all I can say. For a few days, I have thought about how I was going to write this blog, IF I was going to write this blog.
Last week, I announced right here on Falling Upward that Joseph is going back to school and we will be moving come the fall. And then, he had his yearly Marfan’s appointment. The best laid plans…..
The best laid plans seem to bite the Rutchik family right in the ***, if you really want to know how I feel.
The long and the short of it is that his heart is leaking, a lot. This leak has caused it to enlarge by quite a bit. If that wasn’t bad enough, we aren’t just feeling like our world is falling in on us, we are feeling like it’s our fault. Three years ago, followed by an emergency wedding, he had an aortic root replacement. Upon the recommendations of well, everyone, we went with the valve saving option. And, here we are, three years later, having what was done before undone, to get to the valve, replacing the valve, and re-doing what was done three years ago. We don’t blame anyone, only 5% of people end of having to have the valve replaced in the first 5 years. We should have known. If ever there were going to be people in that 5%, if would be us.
So, here we are, going to consults and completing tests so we can set this nightmare up. It should happen very soon, at the recommendation of our doctor.
There it is. This is now the only priority in my life. My husband is very worried about money (we don’t have disability as an option at his job) and having to parent while not being able to hold the girls. As the wife, I’m more worried about, well, I won’t even write it, but you must know what I’m worried about. I could care less about all of those other things. We’ll figure that all out after we get through the operation. I’ll live in a cardboard box if I can do it at the side of my husband. I love him more than anything else I could ever want in life.
I didn’t know if I wanted to blog about this, or if I wanted to go MIA from the blogging world as I have done with Facebook. However, God willing, I will sitting in hospitals for many, many weeks to come, and will need something to keep me sane. Plus, this family needs prayers, prayers, prayers, and I know the Catholic mommy community here in the blogging world can offer me that. I thought about making one of those cool buttons like I have seem other families do when they are in need of prayer for health reasons, but I don’t know how to do that and I don’t really have many followers. I’m not a blogging expert, by any means. I surly don't have the energy to take a crash course in the art of the blog. I don't have the energy to eat, or smile right now.
So, I will blog on, I guess! I’m experiencing very dramatic peaks and valleys right now, so I can’t promise a well balanced person, but it will be me. This is my life now.
I’ve had some extraordinary experiences just since this happened on Wednesday. I am in the process of putting words to those experiences and sharing them here. They involve the great support of family and friends, faith struggles and feeling as if we are known as the “Poor Rutchiks” instead of just “The Rutchiks.” We seriously seem to have that cartoon cloud overhead. We discussed how humbling and difficult it is to know there are so many people praying and thinking of us. Although it makes us very uncomfortable, we unfortunately are in great need of it, again..........and thus, I end with a prayer request.
We are:
Joseph and Holly
Teresa ( 18 months) Anna (6 months)
Please join me on what I hope will be a journey full of faith and miracles. Pray for Joseph’s health, pray for our baby gals who love their daddy so much, pray for our faith..............
Joseph and Holly
Teresa ( 18 months) Anna (6 months)
Please join me on what I hope will be a journey full of faith and miracles. Pray for Joseph’s health, pray for our baby gals who love their daddy so much, pray for our faith..............
..............pray that God has only hit “pause.”
